Reference Pages

Prostate cancer glossary of terms:
http://www.prostatepointers.org/prostate/ed-pip/glossary.html

Prostate cancer acronyms and abbreviations:
http://www.prostatepointers.org/prostate/ed-pip/acronyms.html

NCI: What You Need To Know About Prostate Cancer
http://cancer.gov/cancerinfo/wyntk/prostate

The Hypertext Guide to Prostate Cancer
http://www.hypertext.org/A Primer on Prostate Cancer
http://www.phoenix5.org/Basics/DPprimer0918.html

Prostate Cancer Stages
http://www.phoenix5.org/staging.html
http://www.texascancercenter.com/prostate/stages.html
 
WebMD Health
http://my.webmd.com/medical_information/condition_centers/prostate_cancer
This is the prostate cancer page of WebMD.  You will find many basic articles and places to go for further information.

Questions and Answers about PSA
http://cis.nci.nih.gov/fact/5_29.htm
Since the PSA is the test done prior to biopsy and there are many questions about this test, here is the National Cancer Institute.

National Cancer Institute (NCI): Prostate Cancer Home Page
http://www.nci.nih.gov/cancer_information/cancer_type/prostate/
Sponsored by the NIH. The information is divided to Patient information and Physician information. Here you can find the basics of prostate cancer, treatment options and clinical trials information.
In the area of basic information you can find information about prevention and screening.

NCI: PubMed
http://www.ncbi.nih.gov/entrez/query.fcgi?db=PubMed
A nice feature of the site is the introduction to a source of finding abstracts from the literature.
To find clinical studies, click under Clinical studies “Search for Clinical Studies”.
You can also see “Updates about prostate cancer”

NCI: Prostate Cancer (PDQ®): Treatment
http://www.nci.nih.gov/cancerinfo/pdq/treatment/prostate
This site gives a useful overview of treatment options.  This is the Patient version.  You can click a tab to get the Health Professional version as well.Quest Diagnostics
        Prostate Cancer Testing

Center for Prostate Disease Research
http://www.cpdr.org/
Patient Information
http://www.cpdr.org/patient_info.html

Prostate Calculator: Forecasting the disease
http://www.prostatecalculator.org/
This site provides four separate calculators for calculating the probability of:
        Cancer spreading outside prostate
        Cancer spreading to lymph nodes
        PSA recurrence after surgery
        Survival (with drug treatment)

Prostate Cancer –Partin Table
http://urology.jhu.edu/Partin_tables/index.html
This site provides a calculator with four results, the probability of:
        Organ Confined Disease
        Extraprostatic Extension
        Seminal Vesicle Invasion
        Lymph Node Invasion

Oncolink- Prostate Cancer: The Basics
 http://www.oncolink.com/types/article.cfm?c=16&s=57&ss=608&id=8039
Prostate Cancer Resource Guide
http://www.afud.org/pca/pcaindex.html

National Cancer Institute's Prostate Cancer Home Page
http://www.cancer.gov/cancerinfo/types/prostate

John’s Hopkins Prostate Cancer
http://urology.jhu.edu/diseases/prostate/prostate.html

OSCO site
http://www.oncology.com/plwc/MainConstructor/1,1744,_12-001158,00.html

American Foundation for Urological Disease
http://www.afud.org/pca/pcaindex.html
Resource book

Albertson Table - (Coming soon)

Page Content

Universities and Centers of Excellence

Not a complete list. More to come.UCSF- Prostate Cancer
http://www.ucsfhealth.org/adult/medical_services/cancer/urologic/conditions/prostate/signs.html

UCSF Cancer Center Clinical Trials
http://cc.ucsf.edu/trials/adult_index_gu.html

University of Michigan urological oncological site
http://www.cancer.med.umich.edu/prostcan/prostcan.html

Memorial Sloan Kettering Cancer Center
http://www.mskcc.org/mskcc/html/403.cfm

M.D Anderson
http://www.mdanderson.org/site_map

M.D. Anderson- specific site for prostate
http://www.mdanderson.org/diseases/prostate/

Cedars- Sinai Prostate Cancer Center
http://www.csmc.edu/prostate/

City of Hope - General
Prostate Cancer  -   Treatments

Page Content

Clinical Trials

NIH: Understanding Clinical Trials
http://www.cancer.gov/clinical_trials/understanding
This sites gives useful information about clinical trials in general.

NIH: Finding Clinical Trials
http://www.cancer.gov/clinical_trials.
This site gives you the ability to find trials of different types within a certain distance of your home according to ZIP Code. From this site you can click on the advanced search form, and be even more specific with your selection criteria.

NIH: Search for Clinical Trials
http://clinicaltrials.gov/ct/gui/screen/SimpleSearch
This link lets you find all the trials for a disease you type in, such as Prostate Cancer.

Veritas Medicine: The easy connection to clinical trials.
http://www.veritasmedicine.com/d_index.cfm?did=22&bif=h
Veritas Medicine is a web site run by Harvard medical School. The materials were created by the National Institute of Health.
It is a good site, run by a physician from Harvard Medical School. It is very good for finding ongoing clinical trials that match your medical and geographic criteria. You can register and receive Personalized Trial Notification. It is informative and keep you informed about medical research. You can learn about treatment options, about drugs in development and drugs in current use.

CenterWatch: Find prostate cancer clinical trials according to state.
http://www.centerwatch.com/patient/studies/cat36.html

Page Content

Pathology

David Bostwick, M.D.
https://www.bostwicklaboratories.com/
The site is run by Dr David Bostwick M.D who was the expert pathologist from the Mayo clinic. The site provides basic medical information about prostate cancer. Not all options for treatment are represented.

It provides services like second opinion reading the slides, DNA Ploidy and other tests on the biopsy material:
http://www.bostwicklaboratories.com/patientservices/index.html

Since the site was created by a pathologist this site has Digital atlas of pathological slides of prostate cancer:
http://www.bostwicklaboratories.com/digital/prostate/adenocarcinoma.html
Under medical information sections I found the Glossary to be very good.

Page Content

Survivors Web Sites

These sites offer a wide variety of information and resources on many aspects of prostate cancer.

Prostate Help - Don Cooley

Prostate Pointers - Gary Huckabay

Phoenix5 - Robert Young

Page Content

Nutrition and Prostate Cancer

Lifestyle Changes Help Prostate Cancer- Article
http://webmd.lycos.com/content/article/64/72268.htm
This article describes a study measuring the effect of low-fat, unprocessed foods combined with exercise and group support on PSA levels.

CaP CURE: Focus on Nutrition
http://www.capcure.org/takecharge/nutrition.asp?mainid=7&subid=3&param=takecharge
You can read their 39-page book, "Nutrition and Prostate Cancer: The Complete Report" online in HTML or PDF format.  Also offered are practical tips for eating and recipes.

American Cancer Society: Food and Fitness
http://www.cancer.org/docroot/ped/ped_3.asp?sitearea=ped&level=1
Provides a variety of information of various nutrition and lifestyle subjects, and includes a Body Mass Index calculator.

Memorial Sloan Kettering Cancer Center: Nutrition
http://www.mskcc.org/mskcc/html/5707.cfm?Criteria=Nutrition&x=14&y=16
Search results - lists general articles, doctors, clinical trials, and research on nutrition and cancer.

Here are MSK's guidelines on nutrition:
http://www.mskcc.org/mskcc/html/2904.cfm

Tuft”s University: Nutrition Navigator
http://navigator.tufts.edu/about.html
Provides experts' ratings of nutritional information websites.

A Diet for Cancer? The Dean Ornish solution
http://content.health.msn.com/content/article/11/1668_50702
An interesting article on the research and the pros and cons of Dr. Ornish's rigorous dietary approach.

Page Content


Alternative Medicine

National Center for Complementary and Alternative Medicine
http://nccam.nih.gov/

A good site for Alternative and Complementary treatments. The main shortcoming is the fact that prostate cancer as a disease is very much underrepresented. There is a lot of information about other cancers.

A special office for Alternative Medicine was created in 1993 within the NIH.
The services provided are as following:
    1. Health information –
        a. Explaining Complementary and Alternative Medicine.
        b. Alerts and Advisories
        c. Treatment Information.
    2. Clinical trials
        a. Understanding Clinical Trials
        b. Finding alternative medicine clinical trials.
    3. News & Events
        a. Meetings and Workshops.
        b. Lecture series
        c. Press releases
        d. Newsletter

 NCI: Complementary and Alternative Medicine
http://cancer.gov/cancerinfo/pdq/cam
A MUST READ - You can find information about some of the specific alternative medicine substances.

Quackwatch
http://www.cancertrack.com/cgi-bin/search/hyperseek.cgi?ID=963671660
A MUST READ - The site includes a listing of over 100 dubious treatment approaches, most with detailed comments.

Rosenthal Center - Internet Resources on Cancer
http://www.rosenthal.hs.columbia.edu/About_us.html
The Rosenthal Center's broad goals are to contribute to the informed research and practice of complementary and alternative medicine and to foster the development of a more comprehensive and inclusive medical system. In the case of cancer, as with other medical problems, it is difficult to obtain advice, referrals or simple information outside of mainstream medicine. Increasingly, patients and care givers have to do much of the research for themselves.

CancerGuide: Alternative Therapies
http://cancerguide.org/alternative.html

Herb Research Foundation - Herbs and Herbal Medicine for Health
http://www.herbs.org/index.html
Learn about herbs for health from the nonprofit Herb Research Foundation dedicated to responsible informed self-care with medicinal plants

National Association for Alternative Medicine
http://naam-cancer-homepage.lle.org/
Their new web site:
http://naam-cancer.lle.org/
Their mission is to broaden the resource choices available to those concerned with cancer.

The Alternative Medicine Homepage
http://www.pitt.edu/~cbw/about.html
The Alternative Medicine Homepage is a jump station for sources of information on unconventional, unorthodox, unproven, or alternative, complementary, innovative, integrative therapies.

Alternative Medicine Foundation, Inc., Bethesda, MD
http://amfoundation.org/
AMFI is a 501(c)3 nonprofit organization devoted to providing responsible information on alternative medicine, integrative and complementary medicine, and to conserving and respecting indigenous knowledge and ancient systems of medicine.

Holistic Health Care Options for Cancer and Other Illnesses
http://drshawlac.tothe.net/
Read about holistic health care options for cancer and many other illnesses. Find articles about HANSI, a new homeopathic remedy that's getting VERY exciting results.

Longwood Herbal Task Force
http://mcp.edu/herbal/
Acidophilus/Bifidobacter

Page Content

Treatment Oriented Sites

Radical Prostatectomy
Surgical removal of the prostateJohn Hopkins University    need specific sites

Dr. William Catalona

Anatomical Radical Prostatectomy-
http://urology.jhu.edu/surgical_techniques/radical_prostatectomy/index.html

Page Content


Laproscopic Prostatectomy
This procedure involves surgery with special instruments through very small incisions.  Recover time is greatly reduced.
Henry Ford Health System - The Vattikuti Institute of Prostatectomy

Dr. Mani Menon, Director of the Vattikuti Urology Institute, is a former teacher and friend of Dr. Barken, going back 23 years ago.  Dr. Barken says he is a great surgeon, excellent doctor, and a nice guy.

Check City of Hope in University and Centers of Excellence.

Cryosurgery
This procedure is the freezing of the prostate in order to destroy it, killing the cancer cells.
Endocare
Patient Information
Corporate Site
Check http://www.omnipresentations.com/endocare/sample.htm for an interesting slide and video presentation overview of the prostate cryoablation process.

Duke Bahn, M.D.
             see also
Cryotherapy Information provided by Duke Bahn

 Gary Onik, M.D.

Florida Hospital Celebration Health Research Institute"How I Do It"          
   
by Fred Lee, M.D.; Duke K. Bahn, M.D.; Timothy A. McHugh, M.D.; Gary M. Onik, M.D.; Fred T. Lee, Jr, M.D.
Crittenton Hospital Medical Center

Page Content

 Radiation Seeds (Brachytherapy)
This is the killing of the cancer cells by the insertion of small "seeds" containing radioactive material.

Seattle Prostate Institute - Patient Information
http://seattleprostateinst.com/patient-frames.htm
Dr. John Blasko's practice is at this institution.

Radiotherapy Clinics of Georgia (RCOG)
http://www.rcog.com/home.htm
Dr. Frank A. Critz is at RCOG

Dattoli Cancer Center
http://www.dattoli.com/

Page Content

Beam Radiation
This is the destruction of the prostate by means of electron or proton beams.

At University of California, San Francisco: Dr. Mack Roach

At Harvard: Dr. Anthony D'Amico

Loma Linda University - Proton Treatment Center

Page Content

HIFU
High Intensity Focused Ultrasound
Dr. Doug Chinn

Medical Oncology, Chemotherapy
This is use of chemical agents to destroy or slow the progression of prostate cancer.

More information coming here, soon.

Logothetis M.D.A"

Comprehensive Management of Prostate Cancer" by
Charles E. Myers, M.D. -- PCa Medical Oncologist
http://www.hormonerefractorypca.org/myers425.htm

Mark Scholz

Eric Small
http://cc.ucsf.edu/people/small_eric.html
Susan Slovin Memorial Sloane Kettering
Steve Strum

Page Content

Hormonal Blockade

More information coming here, soon.

Page Content

Pharmaceutical Companies

More information coming here, soon.

Astra Zenca
Medical Information
Corporate Site

Amgen
Schering      EulexinMerck & Co.     
Pfizer   
Janssen Pharmaceuticals
Pharmacia
TAP Pharmaceuticals
Upjohn

Page Content


Quality of Life

More information coming here, soon.

Erectile Dysfunction - Impotence
The PCAI list of Erectile Dysfunction specialists
http://www.prostatepointers.org/pcai/ed.html
Links to ED physicians by state, and other references

Page Content



Activist and Political Organizations

National Prostate Cancer Coalition
http://www.pcacoalition.org/


Page Content



Other sites, not yet categorized

There are good sites here.  We just wanted to go public without taking the time to categorize every site.

Florida Prostate Cancer Education Network
http://www.florida-prostate-cancer.org/

Prostate Cancer InfoLink Archive
http://www.phoenix5.org/Infolink/index.html

Association of Cancer Online Resources
http://www.acor.org/

MultiGraph: your medical history in graphic form, free from PC-REF
Contact John Fistere at john@pcref.org
http://members.cox.net/jfistere/MultiGraphIntro.htm

The Education Center for Prostate Cancer Patients
http://www.ecpcp.org/

PAACT
http://www.paactusa.org/WellnessWeb Prostate Cancer Center
http://www.wellnessweb.com/PROSTATE/prostate.htm    (Broken link. Know of replacement?)

You Are Not Alone
http://www.yananow.net/

Us Too!
http://www.ustoo.org/

Malecare: lecture transcripts, English and Spanish NYC support groups
http://www.malecare.com/

Canadian Prostate Cancer Network
http://www.kaptiv-8.com/cpcn/

Brotherhood of the Balloon -- Proton Treatment Info and Support
http://www.protonbob.com/homepage.asp

PSA Rising Magazine
http://www.psa-rising.com/    (Broken link. Know of replacement?)


Prostate Cancer Action Network
http://www.prostatepointers.org/pcan/

National Physician & Family Referral Project -- PCa in African-American
Men
http://npfr.50hoops.org/

Powerful search engines and tools:
Pubmed search -- http://www.ncbi.nlm.nih.gov/entrez/query.fcgi
http://www.google.com/


Page Content


Internet Mailing Lists

An Internet Mailing List is a way for a group of subscribers to communicate with each other using email.  When a subscriber posts a message on the List, it is sent to all subscribers by email, so everyone sees it.  When there are replies, everyone can see all the replies. 

(Thanks go to Nancy Peress, whose Resource List posted on PPML was a valuable reference in preparing this list.)


Page Content


Physicans' Advice
Coach to Player - C2P
This is the Mailing List of the Prostate Cancer Research and Education Foundation.  This is for the purpose of discussing the issues relating to an individual's case, and providing information on a course of action useful to the survivor and his loved ones.  Dr. Barken's advice is unbiased, and referrals to physicians in the patients home area are often made.

The emphasis is on philosophy and understanding, and provides tools for the management of the patient who has prostate cancer.  The philosophy includes
       o Patient Empowerment
       o Minimum Intervention with Maximum Surveillance to insure Maximum Quality of Life. 
       o Implementing the art of combining medical science with physician's experience and patient values and preferences.

Click to subscribe: Coach to Player


Physician to Patient (P2P)
The purpose of the P2P mailing list is to provide the prostate cancer  patient and loved ones with information from physicians about the diagnosis and treatment of prostate cancer. This is a moderated list without the high volume normally associated with mailing lists or the frequent off-topic questions.  This is a technical list, run by medical oncologists associated with the Healing Touch Oncology private practice, and requires considerable knowledge by the patient.

To subscribe, send an email

      To: majordomo@prostatepointers.org
      Subject: (blank or a dash)

      subscribe p2p
      end

Within a few minutes, you should receive a confirmation message from
majordomo. Please follow the instructions *exactly* in order to activate
your subscription.

IMPORTANT:
Every message sent to p2p must contain a Prostate Cancer Digest.
Instructions for preparing your digest are in the first issue of PCRI
Insights, which you can get in .pdf format here:

http://www.prostate-cancer.org/resource/insights.html

The same instructions are also available as a webpage:

http://www.prostatepointers.org/p2p/pcd.html

Page Content



Survivors Discussion Lists
These two lists are operated by patients for patients.  They discuss all patients' concerns about prostate cancer, treatments, quality of life, and other issues. 

Most of the mailing lists below are unmoderated, which means subscribers' messages are posted without prior review.   One should note that the opinions expressed are not the views of the list management, and that opinions may sometimes be offered by people who are not experts, or maybe not even knowledgeable, on the subject being discussed.  So use the information with caution, and check the statements against other references. 

Prostate Help Mailing List (PHML)
Click to subscribe: http://www.prostate-help.org/cajoing.htm

Prostate Problems Mailing List (PPML)
Click to subscribe: http://www.acor.org/prostate.html

For help with subscribing - email PROSTATE-REQUEST@LISTSERV.ACOR.ORG

Page Content



Support Lists

The Circle
Support for wives, families, friends, and significant others of men
with prostate cancer -- and, of course, the men themselves. To
subscribe, send an email

      To: majordomo@prostatepointers.org
      Subject: (blank or a dash)

      subscribe circle
      end

Within a few minutes, you should receive a confirmation message from majordomo. Please follow the instructions *exactly* in order to activate your subscription.


Humor And Healing
HAH is a humor list for the online PCa community, more intimate and friendly than the big Internet joke lists.

Click to subscribe: http://www.prostatepointers.org/mailman/listinfo


Prostate Cancer and Intimacy (PCAI)
PCAI is a mailing list for frank and open discussion of the sexual issues
surrounding PCa. To subscribe, send an email

      To: majordomo@prostatepointers.org
      Subject: (blank or a dash)

      subscribe pcai
      end

Within a few minutes, you should receive a confirmation message from
majordomo. Please follow the instructions *exactly* in order to activate
your subscription.


Spirit
Spirit is a mailing list for those who want to share spiritual
support as they live with prostate cancer.

Click to subscribe: http://www.prostatepointers.org/mailman/listinfo/spirit

Promise
A mailing list for those grieving a loss. Also offers help and support to
those with a spouse, partner, or family member in the last stages of life.
To subscribe, send an email

      To: majordomo@prostatepointers.org
      Subject: (blank or a dash)

      subscribe promise
      end

Within a few minutes, you should receive a confirmation message from majordomo. Please follow the instructions *exactly* in order to activate
your subscription.

Page Content

Political Action

Prostate Cancer Action Network (PCAN)
A forum for discussing important issues affecting the care and treatment of prostate cancer survivors, and ways to bring about
needed change.

Click to subscribe: http://www.prostatepointers.org/mailman/listinfo

Veterans with Prostate Cancer
This is a list dealing with service related issues and claims such as those relating to Agent Orange.

Click to subscribe: http://lists.phcagroups.org/mailman/listinfo/veterans

Page Content



Survivors' Treatment Oriented Lists
Disclaimer: We have not reviewed the nature of the discussion on these lists and they are offered for information only.  No endorsement is intended or implied.

Seed Pods
A mailing list for those interested in brachytherapy (radioactive
seed implants) as a treatment for prostate cancer. To subscribe,
send an email

      To: majordomo@prostatepointers.org
      Subject: (blank or a dash)

      subscribe seedpods
      end

Within a few minutes, you should receive a confirmation message from
majordomo. Please follow the instructions *exactly* in order to activate
your subscription.

RP
A mailing list dedicated to the needs and concerns of radical
prostatectomy patients. The sole purpose of this list is to narrowly
focus on the concerns of those who have already had an RP or have
selected RP as their treatment.

Click to subscribe: http://www.prostatepointers.org/mailman/listinfo

Ice Balls
A mailing list offering information and support to those interested
in cryosurgery for prostate cancer. To subscribe, send an email

      To: majordomo@prostatepointers.org
      Subject: (blank or a dash)

      subscribe iceballs
      end

Within a few minutes, you should receive a confirmation message from
majordomo. Please follow the instructions *exactly* in order to activate
your subscription.

CHB
CHB offers discussion and support for patients interested in any form of
hormonal blockade. This includes: orchidectomy, medical hormonal blockade
[lupron, flutamide, proscar, etc.] as well as food supplements such as PC-SPES.

Click to subscribe: http://www.prostatepointers.org/mailman/listinfo

EBRT
EBRT offers discussion and support for patients interested in any form of
radiation therapy for prostate cancer.

Click to subscribe: http://www.prostatepointers.org/mailman/listinfo

Watchful Waiting (WW)
WW offers discussion and support for patients interested in Watchful
Waiting as a strategy for the management of prostate cancer.

Click to subscribe: http://www.prostatepointers.org/mailman/listinfo/ww

Page Content